Friday, June 17, 2005

Heart Conditions, Cardiologists, and Eating Disorders...

Hello Ladies....
It seems that a lot of gals are going through heart related issues, cardiologist appts, etc. Lets discuss this all here.......tell us how you are doing, what you feel and think about all of this, etc....
Katie- so glad you posted to the blog! Good job! :) I am glad that we can stay in touch with you throughout the week this way...:)
Jamie- how are you? what is happening with dance trip vs. hospitalization?
Amanda - how did your doc visit go?
Anyone else have thoughts or feedback regarding this important issue of heart conditions related to eating disorders?
Check out this link for great heart info:
http://www.cureresearch.com/sym/heart_symptoms.htm

j.

20 comments:

eating disorder hope said...

Here is a specific link to anorexia related heart info:

http://www.cureresearch.com/a/anorexia_nervosa/intro.htm

Jacquelyn

Amanda said...

Hi, Everyone!

My appt. with Dr.Kelly went very well! She ordered some additonal lab work on me and says that I can continue seeing my local psychiatrist. She had a suggestion regarding medication that I will bring to my psych's attention next time I see her. She thought I was heading in the right direction and doing all the things I should. She recommended gaining some weight. LOL!

My next test is the bone density test on June 28 and then the cardio workup on June 30.

That's all that's new here!

Jacquelyn - thanks for the anorexia/heart link - very interesting!

Amanda

Jamie said...

yay for this topic!

Jamie said...

o yeah, to answer your question Jacki - nope, I'm not aloud to go to Orlando. My dad called them today and we can get most of our money back once we fax a letter from my psychiatrist confirming why I can not attend.

yep,well I'm completely devastated about this whole ordeal but I'll just block it out and act non-chalant about it to avoid feeling overwhelmingly depressed/dissapointed/angry/confused/etc....

so my dad is making phone calls to hospitals to see if thats a possibility for me to go...
fun fun...

I talked to my sister today. She said that she really wants to help me through all this since she understands...

My appointments at Dallas Presby. went well -I got 4 vials of blood drawn for blood work(-that made me feel a bit weak to get all that blood pumped out of me...is that normal to feel weak?). I also got a bone density scan today. They said that my results should be in by Monday. woo hoo... Then I go for the stress test on Tuesday... blah...

traw-la-la...

la-dee-da...

this is all ridiculous -I'm fine...I could've gone to Orlando but.......nope.....

I've just got to be optimistic.


Todays Optimistic Thought:

ummm....I guess that I'm thankful to be alive...haha... yeah whatever...lol...


Take care everyone!
*~Jamie~*


yay....

woo hoo...

(::side note:: I'm being completely sarcastic about the 'woo hoos', the 'yays', and all the other terms listed above that indicate 'excitement' and 'happiness' because God knows - I'd be lying if I was really happy and excited...hmmm...lol)

XOXO

Anonymous said...

Hey guys! SO glad to hear that you all had your appts. and they went fairly well. As hard as it is, I encourage you to really take their advice. Amanda, I'm so glad Dr Kelly thought you were on the right path. I'm proud of you, you're doing great. Jamie, I can totally relate, I got pulled out of school and Austin to come back here to go to treatment. It seemed like the worst thing in the world and I wished death upon everyone involved, but it ended up being the most important thing I've ever done for myself. I know this seems horrible, but I think this will end up being a blessing in disguise.

Also, I've been talking to Jeanette a lot and I'm actually going to visit her today. Her potassium keeps dropping and it seems very discouraging to her. But she out of ICU and hopeful to get in to Presbyterian. Anyway, call or pray for her if you think of her. Have a great weekend guys!

Much love,
megan*

Anonymous said...

well...here it is my birthday...and i am sitting here being in a bad mood, and the thought just crossed my mind that jb had to know what today was...anyway, so i guess i will let everyone know how the cardio appt went on thurs. well, i was 30 min late, i was extremely tired, i was told that the mitral valve is still leaking (don't know if it's worse) and that now my aortic root is stretched which basically means that my heart muscle is getting weaker...went from 60th percentile last month to 95th percentile...whatever that means...below 5th and above 95th is considered abnormal...she asked me if i wanted to die and i told her i didn't know...she asked me if i would let her re-feed me (like i am some sort of freakin baby) and i said no...i will "re-feed" myself if i want to...she asked me if there was anything she could do to help and i said no. so, if anyone knows what this 5th and 95th percentile crap is, please let me know...i have looked online (webmd.com et cetera) and can't find what those #s indicate...i am sorry...i know this is very negative...i will probably get banned from ever posting again...i don't even know if i want to post again, i don't know what the hell i am clinging to...this sense of community...i don't belong here, i mean it's such a wonderful resource for people really struggling through these issues and i just bring a negative vibe...i think...hmmm...maybe part of this negativity is...well i know what a lot of it is...i hate birthdays, i am lonely, this is the first time i have really expressed outside of a dr.'s ofc how i really feel about myself...driving back from dallas...i mean shouldn't i feel scared, or unnerved, or sad, or something? i didn't feel anything...nothing...i have so many positive things to say to other people, i mean i think pretty good advice -- if i may say so myself ;) -- i have so much empathy for other people, i want to help people, everyone deserves to be happy, and i truly believe that...but somewhere in there the "i" gets lost in the "everyone"...the "i" gets lost in the "we"...i am so sorry, this is the most self-pitying, whiny piece of tripe i have ever written, and probably any of you have read (if you're still reading by now!)...i really debated about whether actually posting it...i have previewed it a couple of times, and i am really worried...i still want all of you to think i am sane...but i think i am going to have to...it's the truth, it's what i am feeling, and i have got to be real somewhere

Jamie said...

awww Katie Katie Kaite
you don't sound like an idiot at all. You're just expressing your true feelings and thats what you're suppose to do. I feel the same way. I hate complaining because I feel like such a self-absorbed pessimistic freak. -you sound completely normal; just like the rest of us. I hope that you do continue to post because we love having you here. I'm glad that you did post this comment because its good to express yourself -and you weren't doing it in a negative vibe-ish way...you're comments are very much appreciated here. The last email I sent you seems like I'm also just being a negative complaining brat -and that what I feel I am... I don't deserve anyones respect of empathy because I'm such a downer...I feel like I shouldn't complaim so much. I should be happy and grateful for the things that I have...
there is no need for you to appologize for your last post. there wasn't anything wrong with what you wrote.

Jamie said...

*****************************************
o yeah! I forgot to post a comment saying thank you for Megan's comment. -Thank you Megan. yeah, I know that Orlando being taken away from me is for a good cause, I'm just really dissapointed... thanks for your encouraging words though -it means alot to me to hear that theres hope in the future because I'm currently feeling pretty hopeless...and I'm just so sad that it had to come to this...o well...

thats really awesome that you were able to go visit Jeanette today! that is really sad how her pottasium is still dropping...I hope that she will make it through ok... that is great that she is out of ICU and that she will probably be in Presby. soon! I will definitely call and pray for her!!!
Take care everyone!!!
*****************************************

Amanda said...

Megan,

How's Jeanette? Does she have a new phone number now that she's been transferred to a different room?

How'd telling your story at AA go today? I was thinking about you!

Amanda

Amanda said...

Katie,

Hey, if you're crazy, I'm definitely right along with you! LOL!!! Don't ever feel bad about stating your honest feelings. It's a great thing to do! The fact that you're able to acknowledge and identify your feelings is a tremendous step forward.

We want you here. You're stuck with us. :)

Amanda

Katie said...

Hey guys,

I talked to Jeanette tonight, and she is probably going to Presby tomorrow and she won't be able to talk to anyone for 3 days. She seemed to be in good spirits, I am very sorry I won't be around for long when she is able to make it on Wednesdays. Gosh, I am going to miss you guys...apparently, U of O has a really good ED program at the school that provides nutrition counseling, therapy, et cetera...of course, I don't have an ED...so sorry, but I still can't...I don't know...doesn't seem real to me. Anyway!! I can only hope that the people I find up there will be half as wonderful as all of you have been! Oh my gosh, we should have a party before I leave!!

On a more serious note...I know I should be taking everything more seriously, it just feels so...impersonal...like it's not me...has anyone else ever felt that?

Best wishes and love to all,
Katie

Jamie said...

Hello everybody!

I took my ambien(sleep aid) last night for the first time...I didn't really notice anything, but I'm sure it'll take a while...I took my generic brand of Prozac this morning -didn't notice anything with that either. It is a small dosage, though -20mg...

hmmm...

Well Katie, that is really great that U of O has and ED program. I'm sure that there will be plenty of really nice people affiliated with it. -but we'll really miss you down here!!! ...but yeah, we should really do a going away party for you. That'd be alot of fun! I love partys lol!

Does anyone know Jeanette's address? I was going to send her some flowers, but I don't know where to send them to...

Megan- yeah! how did the AA life-story thingy go? I'm sure it went well since you have so much insight on things. You are very bright and smart. I love hearing from you at group. Actually I love everyone at group -you guys are like my adopted family! Everyone is so good at giving support -I really look forward to wednesdays now.

Take care everyone!

o, and by the way Jacki-I love those Pro-recovery bracelets! Can I pay you for one in cash at group this wednesday?

later!
*~Jamie~*

Katie said...

Hey guys,

Just talked to Jeanette, and they are discharging her tonight...even though her potassium is still dropping. She was supposed to go to Presby, but there isn't availability right now. She will be joining us on Wed, and I know she would love to hear from everyone. Keep her in your thoughts and prayers.

Love to all,
Katie

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